Data Initiatives

From one test to generations of better care

A test result helps one person once. Data collected over time helps clinicians care, communities prepare and governments plan for the generations to come.

How it works

  • Each dipstick will carry a QR code.
  • Patients or clinicians scan it with a mobile app or specialized reader designed by ILSC and our partners LynxIQ and HiComp to log the result.
  • Participants can track their results over time.
  • Community providers can follow up with patients who need care.
Health data charts on a screen

Why data changes everything

Kidney damage is often invisible, and so is its scale. Where few people are tested, no one can see how many are affected, who needs care or what it will cost. Data makes that visible, from one person's results to a nation's health picture.

How one test's data ripples outward Data from a single test helps the individual know and track their kidney health, helps providers act early, helps communities see how common kidney damage is, helps governments plan, train and advocate, and builds evidence that improves care for future generations. Insights flow back to improve care at every level. Individual Provider Community Nation and society Future generations Knows their kidney health early and tracks it over time Acts before damage advances and plans follow-up care Sees how common kidney damage is and where to focus support Governments prepare budgets, train staff, set policy and advocate Evidence that shapes research, prevention and care for children who come next Insights flow back to improve care at every level
Every result logged is one person's health record and, combined with others, a picture of a community's health that leaders can act on.

For people and their providers

Results tied to the individual give each person a record of their kidney health over time. Their clinicians can see changes early, start preventive care and plan follow-up, instead of reacting once damage is advanced.

For communities and governments

Combined, anonymized results show how common kidney damage is and where. Health and finance ministries can prepare budgets, train health workers, stock supplies and advocate for funding, with evidence in hand.

Over time, this evidence guides research and prevention, so the next generation of children, especially those born with sickle cell disease, grows up with better care than the last.

An open platform for public health

ILSC is building its data platform to connect with existing health systems, so clinicians, researchers and governments can put the insights to work.

Accessibility

The test and its results are designed to be available to everyone who needs them, widening their impact.

Interoperability

Shared standards let the test fit into existing health solutions without compatibility problems.

Data sharing and privacy

Anonymized data informs public health strategy and resource planning, with strict adherence to global privacy and security standards.

Our commitments

Data collection will follow global standards for privacy and security. Insights will support research, public health planning and continuous improvement of the test.

Go deeper

A closer look at ILSC's data initiative: how results are collected, protected and turned into insight for patients, providers and health leaders.